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Celine Dion vowed Monday her “passion as a performer will never disappear,” despite health struggles she says are still just a small part of her monumental story.
“I’m not dead,” the singer told AFP on the red carpet, ahead of the premiere of the both wrenching and joyful documentary “I Am: Celine Dion.”
The movie focuses on her soaring career and more recent challenges with a rare neurological disorder that has drastically hampered her ability to perform.
“When life imposes something on you, you have two options. You deal with it or you don’t want to deal with it,” Dion said.
She called her decision to speak out about her condition in the documentary both “the greatest gift and the greatest responsibility,” saying she hoped it would inspire people with similar obstacles.
At one point ahead of the premiere the Quebec-born star switched to her native French, telling journalists that “it’s hard to be here. But at the same time, I’m so moved.”
“I feel that I still have a lot of support and a lot of love and I hope this documentary will help, because it helped me a lot,” she said, detailing her gratitude to her family, her medical team and her fans.
“Even if it’s a forever fight, one day at a time.”
The 56-year old first disclosed in December 2022 that she had been diagnosed with Stiff Person Syndrome, a progressive autoimmune disorder with no cure.
